Drama-rama

Life Lessons from a Former Drama Queen

It began five years ago as I helped my father through his third wife’s death. Almost simultaneously, I plunged headfirst into to the muddled Alzheimer’s world my mother had newly inhabited. Both parents lived on the east Coast and for the next few years I cared for each of them in their separate island homes, leaving my immediate family to fend for themselves three thousand miles away.

When it became clear my parents could no longer live on their own, so began the process of packing up each parent, selling houses, and moving them into their respective senior living communities.

In the midst of that chaos, the Universe decided I could handle more, hurling the sudden suicide of my husband’s daughter into our lives late last year.

Together, we ride the waves of grief—random and epic, with no expiration date—and again unwittingly find ourselves in a trajectory of trauma: a hip injury complete with an aggressively virulent blood infection.

My husband, a fitness trainer, is the healthiest, most active person I know. Suddenly reduced from teaching three cycling classes a week to being housebound on a walker and relying on me to give multiple injections of antibiotics for two months is the uninvited guest at our party, much like my recently-acquired career in caregiving.

It would be easy to resume the role of drama queen, one I relinquished long ago. After years of swimming through the murky haze of an alcoholic life and navigating the even rougher waters of early sobriety, I finally learned that when I stop running the show, I’m free to accept life on life’s terms.

Today, I remain open-minded and willing to do whatever comes next. My caregiving resume has expanded over the years and I continue to engage the essentials of drama-free life: Self-care. Rest. Support Groups. Meditation and exercise. Compassion. Find humor wherever you can. Because, in the immortal words of the Jimmy Buffet song:

“If we couldn’t laugh, we would all go insane.” 

Not Guilty!

I’m at the grocery store, navigating through the chaos of an afternoon before Mother’s Day: more floral arrangements than a funeral home, enough pink balloons to supply a dozen nine-year-olds’ birthday parties, greeting card racks laden with glittery sentiment, chocolate-covered strawberry display that engulfs half the produce aisle. Men and women surround me, their shopping carts loaded with sacrificial offerings to place upon the altars of the women who brought them into this world.

My own offering is modest. A small yellow orchid, beribboned in pink, to pin to her blouse. Two cookies, pink and blue icing stating “I Love you, Mom” and “Happy Mother’s Day.” A card for her collection, one of the few things she’s managed not to lose or throw out.

I will not feel guilty that I did not get her more. Last year, the rose bouquet was overturned not long after I presented it, glass shards to clean up, flowers forgotten moments later.

I will not feel guilty that I choose to take her to the special brunch in the dining room of her memory care community. Last year, the silverware at her favorite restaurant became frightening, napkins mistaken for toast.

I will not feel guilty that she lives in a memory care community. I took care of her with love and compassion for the three years I was her sole caregiver.

I will not feel guilty because I do not visit her every day. Every time I visit, our time together is special.

And I will not feel guilty because she’s already forgotten the memories from moments ago, last week, my childhood.

I am a mother to my mother and I love her unconditionally. For us, every day is Mother’s Day. 

The Red Shirt

#3 in a Series on Purpose

“Is today the day I wear the Red Shirt?” Mom asks, as she does nearly every time I visit.

I don’t mind this question. Or the other millions of questions that repeat like a cassette stuck in an endless loop. After living in Alzheimer’s World for five years, the passage of time no longer matters.

What matters is the Red Shirt.

Earlier this year, we launched Yappy Care, a new program at the animal rescue where I volunteer. Twice a month, we bring a shelter dog to visit the residents at mom’s memory care home. As team captain, mom walks the dog down hallways and patios, stopping to socialize with her friends.

And she wears the Red Shirt, the official uniform of a shelter volunteer.

The Red Shirt reminds her that she has a purpose. Helping others has been a guiding principle in both our lives, a code she instilled in me at an early age. And, it reminds me that even as dementia slowly strips her soul bare, she is still capable of living a meaningful life.

As Bob DeMarco so eloquently reminds us in his Alzheimer’s Reading Room blog:

“Success is what happens to you. Purpose is what happens through you. Meaningfulness is what you give away to others.”